Day 5
Daddy
had plans to be out for part of the day.
The girls and I decided to go to Walmart and wheel Flo around in a wheel
chair. After cleaning up the kitchen, decided to work on the blog for a while
and let the girls play. We then ventured
out. It was good a first but as Flo got
tired she also got a little cranky. After two hours of shopping we decided to
go home. I spent the day just looking at
the swelling in her face. It seemed less
than Thursday but still really bad. I am
hoping Saturday with be a new day. We
wore Flo out at the store and she was ready for bed after dinner. She had rice tonight and I think it was a
good change for her.
Day 4
The
girls had a bit of a lazy day. With
visitors 2 days in a row Flo was really tired.
She and her sister just hung out and watched television which was fine
with me. They did play some, but mostly
just a chill day. Daddy went and got new
supplies of chicken noodle for Flo and chicken fingers for us from the grocery
store. I did some clothes washing and thoroughly cleaned the kitchen. Her pain was less today and we totally missed
a dose meds because of that. The evening
brought us all upstairs for some card games while the evening thunder storm
blew over. My little chicks were a
little scared to be downstairs alone during the storm, so playing card games on
the bed seemed like a better idea. Flo’s
speech is getting worse as her face continues to swell. She slept through the
entire night.
Day
3!
Flo
had an easier night, but the swelling is getting worse. Her mouth is starting to hurt now. She is still having difficulty getting up and
down, but once she is up she is full force.
She informed me today that walking on her tip toes helped a lot. I wanted to cry. She again kept thanking me for taking care of
her and she apologized for needing so much help. She has been doing that since Monday and it
just made me almost cry each time she said it. She is a grateful child. We spent the morning getting her to eat and
taking meds, bath, etc. She got her sister to play Barbies with her and that
was the entire morning for them both. Around 1 family visitors started showing
up. We had cousins and Granny show up
with balloons and ice cream. Yeah! Everyone stayed for an hour and visited. Flo had her cousin here to play with and she
really enjoyed that. After everyone left
she was really tired. She slept really
good and only got up one time during the night.
Day
2
We were up most of the night. All afternoon Flo slept, so I knew that night
she would be ready to party. We had a
wonderful day nurse and then when night time came we had a God moment. Our night nurse had a five year old China
baby at home. How cool was that? She
showed us pictures of her little cutie patootie. We were treated like the stars of the floor
that night. By five am Flo was calling
the nurse when she needed pain medication or anything else. By nine in the morning she was calling the
kitchen and ordering vanilla milkshakes.
She was given crafts, movies, and an invite to see a therapy dog in the
Library at 11:30am. Mark called us at
9:30am to let us know he was coming around 12.
The doctor had come by around 7:00 am Flo was still asleep, but he let
me know that if her pain was managed we could leave in the late afternoon. She was in pain when she got up to go to the
bathroom and when she got back in bed.
Her face was swollen but the doctor told me it would get much worse by
Friday. He basically told us we could leave at any time. We were so tired that
the thoughts of going back home were exciting to both of us, but I think she
really liked having the world at her fingertips. At 11:30 we went down to check
out the dogs and brought back some freebies from the library. If you know my daughter, you know that she
loves the freebies. We got a poster, book
mark and some coloring sheets. When we
got back to her room and Daddy was there.
He brought shampoo and momma was pleased. I jumped at the opportunity to
shower. While in the shower, Mark was
told we could leave. The nurse was
preparing our paperwork. I wish she had
told us before I got in the shower, but no such luck. I went ahead and bathed Flo when I got out
just so the nurse could change her dressing the first time before we left. It took another hour before we could leave,
but at 2pm we were on our way home. We
were all ready to go home and the missing rush hour traffic in Atlanta was a
little bonus. We got home and Flo had a little gift left at the door. We found
out our friends had just dropped it off so we told them to come on back
by. They did and Flo was thrilled. I figured she would be upset because of the
swelling on her face and having them
see her, but she just wanted to see her friends. They played for about an hour and when they
left she was tired. It was good for her
because she only got up a few times during the night.
Surgery
Day!
We got to the hospital at 5:55am. Flo was chatting and
not too upset. We checked in and signed our name to everything.
Everyone was wrist banded and we were told to wait. 10 minutes later they
brought us back. We found out that Flo was tall for her age. Who knew? We
headed back to our room. Room 25 was our holding tank until surgery
time. We met lots of people- nurses, doctors, and the sweet ladies that
make kids comfortable at CHOA. We gained a bear during this time.
He had a gown, hat and socks just like Flo. He went back
for surgery too. We were told the surgery would take 2 hours, 1
hour, 45 minutes, and our take was no one really knows. Flo had not eaten since
9:00pm the night before and neither had we. We held her tight when they
came for her and we both kissed her. We had prayed for her earlier.
She had entertained us for an hour when they gave her the Versed, I know
versed. It is a weird name for a medication. She took the meds and
within 20 minutes she was making us roll. She Face-Timed her sister and
just was entertaining everyone. Evidently that show went on to the
OR. She evidently had the doctor and the nurses in stitches before they
put her under. She told us of this crazy dream she had about the doctor
that I will share later. We told the doctor and he found it incredibly
funny. She slept most of the afternoon. She tried so hard to watch tv and play games, but she was really exhausted and slept until about 5:00pm.
1
Day before Surgery!
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